A controversial Census Bureau proposal could shrink the US disability rate by 40%

Maureen Reid, left, and her guide dog, Gaston, cross the intersection of Wood Street and Roosevelt Avenue with Sandy Murillo, center, and Geovanni Bahena, relying on an audible signal for the blind, on April 26, 2023, in Chicago. The U.S. Census Bureau wants to change how it asks people about disabilities, and some advocates are complaining that they were not consulted enough on what amounts to a major overhaul in how disabilities would be defined by the federal government. (AP Photo/Charles Rex Arbogast, file)

A proposal to change how the Census Bureau produces a key set of estimates about the number of people with disabilities in the United States has sparked controversy among many disability advocates.

Some are concerned that the potential revisions to the disability questions on the bureau’s annual American Community Survey, as well as how the bureau reports out people’s responses, could skew the government’s official statistics. That in turn, advocates worry, would make it harder to ensure that disabled people have access to housing and health care, enforce legal protections against discrimination in schools and at work, and prepare communities for disasters and emergencies.

The proposal has also resurfaced longstanding questions about how accurately the bureau’s data represents people with disabilities in the U.S., especially as more people are living with the emerging effects of long COVID.